Isa wore a pink sweatshirt and red sweats today as she rode her bike with her sister. Her legs are strong. She still trips over her feet, but I can’t say whether that is due to Vincristine damage or an inherited klutziness. Sometimes I am amazed that she is still here. I appreciate her so much. I told her that I was twice blessed by her, once when she was born and once when she went off treatment.
I am grateful for every moment I have with her and her sister in this amazing life.
Last Wednesday we went to the hospital. The front office staff was all new. They had to ask our name!
THEY HAD TO ASK OUR NAME!!!!
Isa’s counts are low normal on most things, and still just about 10k short on platelets. Her spleen shrinks each time we go. NO BIG NEWS!
Each time we go, I feel nervous. A small sense of dread. This time, however, I didn’t even take the Bag of Fun, so although I was nervous, I didn’t plan to stay all day. After the hospital we went on a field trip to a museum! WOW.. an outing!
I just realized that I didn’t even post about her diagnoseversary. January 14, 2009. I remember it very clearly. GG even said that she remembers Isa getting her x-rays. Isa says she remembers getting poked.
How far we’ve come, and I look forward to how far this intense child and I will go. And today, my little cancer survivor read Go Dog Go to me. What a fantastic day today is! And maybe, just maybe, we’ll find the tree with the dog party. The big dog party!
We spent Isa’s 6th birthday yesterday at the hospital. A regularly scheduled appointment.
Her counts are all within normal range, or almost to normal range, platelets only 122k whereas 150 is normal.
For the first time, GG felt a left out. Oddly, Isa got oodles of gifts and presents over the time of leukemia treatments. But, the gifts pushed GG over the edge yesterday. I look at it positively. For three years Isa’s elder sister gave the limelight, and lots of hugs, gifts and worry to her very sick sister. But, now, that Isa’s moving into recovery mode quite strongly, GG is moving into being able to show her emotions.
After some corned beef sandwiches, bagels and lox at the deli, we ate cookies and went home.
The routine is being broken. We won’t be going back for two months. The middle of January. I double checked to make sure it wasn’t going to be a problem if we couldn’t make it. Middle of winter could be snowing and dangerous to drive.
Our next appointment is January 11, 2012. Auspiciously, January 11, 2009 was the first day that her primary care doctor first told me it might be leukemia, with January 14 as her official first bone marrow aspiration.
The protocol calls for the Septra to end on the sixth month off treatment. So we are done with all medications. Isa acts like any other kid who just went through years of chemotherapy and survived, like a kid.
Each day I check my blog stats. Just in case I have a comment I need to moderate. Each day I am struck that I have had someone view the blog. That is too many views. One view could mean that well-meaning friends are dropping by. But I can also see the search engine terms that got them to me.
|blogs about childhood leukemia||1|
|pediatric cancer month??||1|
|interim maintenance i leukemia||1|
|port for blood transfusions look like||1|
|childhood leukemia blog|
Does anyone notice anything. People searching for information about leukemia. I hate that. This means that kids out there are still getting diagnosed with leukemia. That means that even though I am not watching them go through all their treatments. They are still getting leukemia. And I also hate that.
Thanks to WordPress for offering people like us the ability to share our stories for free. And to search engines that help those that need us find us. Thanks for the words that come to help me convey, as best I can, what it means for a child to have leukemia.
Too many views on my blog means that too many parents are searching for information to help their children survive.
Thanks for reading.
For those of you who don’t read comments. I received an incredibly special comment that I wanted to make sure that no one missed.
I have been following your blog for about a year now and the is exactly how and why I came across your blog. There is so much scary information out there that it was nice to find another parent’s perspective, it made it feel more human for me. Thank you for having the courage to write this all down for the world to see, you have no idea how much it means to a cancer mom like me. My brain has been so scrambled since my daughter was diagnosed that I couldn’t possibly articulate the journey in writing on a regular basis. This past month’s appointment(LP month) I sat in the waiting room feeling so sad because the room was filled with new faces, it still brings a lump to my throat, and unfortunately there are worse things than Leukemia. This month I met a teenage boy with an inoperable brain tumor, a 2 year old with leukemia, and a baby with a stomach tumor. There were a few more new faces but I didn’t have the courage to hear their stories, I felt drained and weepy.
Again, THANK YOU for writing this blog.
Today, these searches lead other to us: I have no idea why anyone would search Dirty Family Camping. But the rest show what people need to know, or maybe want to know.
|do children with leukemia have purple circles under eyes?||3|
|low anc in childhood leukemia||3|
|blog about children leukemia||2|
|dirty family camping||2|
|blogs from mothers whose children are on methotrexate for||1|
|leukemia blog child||1|
|child’s hair falling out again in maintenance of leukemia||1|
|getting a lumbar puncture||1|
|delayed intensification leukemia|
If Isa got grades for cancer patientry, then today she’d have gotten an A. Her counts are good, except for her platelets which are riding just below normal at 121k and her spleen is still enlarged but not getting bigger.
She is 112 cm tall and 19.75 kg. She isn’t gaining much weight but is gaining cm, 2 almost every 6 weeks. Our next visit will be on her birthday. One more birthday spent in the hospital!