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New Blog title **updated again!

April 29, 2011

** I changed the title of this blog from Isa, Leukemia, Life  ILL  to  Isa’s Leukemia, Our Lives… .or   I LOL!!!!  Because I do, now that we’re off treatment. ****

Thinking about changing the blog title. First, someone sent me a text using shorthand for the blog, and I’d never noticed that it spells ILL.  And, we’re heading into off treatment territory.

I know a lot of cancer bloggers who head off into different and new blogs, but I was thinking about continuing this one since everyone has become accustomed to it.

Maybe we could have a contest for names? My dream was to use the initials WELL….

Or maybe I’ll just start a new one and keep this one for cancer stuff.

Okay, I am confused myself on what I meant.

Basically, I enjoy blogging, but as we move out of cancer into what could be some semblance of normal life I won’t be writing much except about homeschooling or work or funny stories.

I plan on leaving this blog up and streamlining it a little bit with better links and tags to direct readers around FOR SURE.  BUT…. my question is…. should I leave this one as ILL and go on to a new blog that is WELL (only not really with those initials cuz that is way to hard to find words to fit)  And those who know me can follow to the new place and all the people who don’t will just go there  (ILL) for cancer stuff.

Currently I am thinking NEW blog because the blogroll is all cancer kids and so much about that site would be cancer related that it would be full of cancer and non cancer stuff.

Ann.. I think I am sounding like you thought you were sounding.  Done.

I decided..

Within the next month we’ll be starting a new blog and will update this one regularly and if something cancer wacky happens.  And I am gonna get some kickin name. Anyone interested in suggesting both a url and /or a blog title go for it.

How ’bout Benevolent Despot?  ; )

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16 Comments leave one →
  1. Ann Brown permalink
    May 9, 2011 4:38 pm

    Wahoo!!!!!!!! Congrats!!!!!!

    Scooching over on the comfy OT couch to make some room for you!

    You’re going to get used to not giving your child toxins on a daily basis mighty soon!

    • May 10, 2011 10:26 pm

      I teased Isa tonight to tell her that I’d have to wake her up to give her medicine, she said, “but I didn’t eat cheese.” maybe it hasn’t sunk in for any of us yet.

      gotta get the post up about the last day.

  2. May 4, 2011 3:30 pm

    I am not at the changing blog decision time yet so I have no idea which way I would go. I see this blog as being such an amazing resource and support for others, it needs to be active in some way.

    WELL – Welcoming Everyone Loving Life …..We Enjoy Loving Life…best I can do!
    I usually stay up WAY to late blogging and reading other blogs too.

    It sounds like you are ready to move on and look forward to ‘normalcy’ again….that is wonderful…I know you will be vigilant but I also think you will find many wonderful things to blog about.
    Katy xxx

    • May 4, 2011 10:13 pm

      Dammit Katy You’re no help!!! ; ) Seriously I can’t decide what to do. Imagine, your kid has just been diagnosed with leukemia and you click on some blog and there is all this happy happy joy joy, and you’re like, okay, where is the stuff I need to know. That is one thought, and the second thought is that I have so many blogs on the blogroll…. it could get really crowded… I suppose I could make those a pull down menu, but not as tempting.

      Ty for saying this was a resource. I wanted it to be, but never knew if it was. Plus, thanks for the WELL…. Maybe I should just name it ILL VS. WELL? no sure….

      Probably a new one.. still going that way.

      • Gems and Rhinestones permalink
        May 8, 2011 6:23 pm

        I think you have earned the right to do what is best for YOU….maybe have a link to this blog…it will not go away. I chuckled at your new name idea: ILL vs. WELL…it really shows how far you have come.
        Looking forward to following you, no matter what you decide.
        Love and Happy Mother’s Day xxx

        • Gems and Rhinestones permalink
          May 8, 2011 6:24 pm

          Darn, logged in as other blog…its Katy BTW xxx

        • May 10, 2011 10:27 pm

          ty ty ty …

          now i am not sure again, and even forgot that i was thinking about anything. I’d like to blame this sort of thinking on my age, but it isn’t. maybe I can blame it on living so in the moment that I just don’t remember anything… maybe its just PTSD from spending the past two fliiiking years dealing with leukemia

          • May 11, 2011 9:15 pm

            Mommy brain on speed…that’s leukemia mommy brain!!! Then you crash and burn out….then you have to pull it together and grin and bear it…then the cycle begins again.
            I hope you move into OT with less stress, more tome to just live and enjoy life…and blog in any way you darn well feel like.
            Katyxxx

  3. May 2, 2011 3:50 pm

    I think a new blog would be great. I plan to do the same thing, whenever I get any great ideas for posts . . . if that day ever comes. Right now, I just want to have a “normal” life and I feel so lucky that we are approaching it, that I have hard time imagining it actually happening. You are so right – thank you to all of the children that have gone before ours! And, thank you to all of the families – wow. I am so psyched for Isa’s big day! I have it marked on my calendar! yay Isa and family!

    • May 3, 2011 9:10 pm

      I know, we are sort of unsure if this Monday we’re done or not done. The nurse practitioner gave us her ot date, May 8, 2011. BUT, then she went on to say, that she didn’t know for sure if we had to get VCR and DEX for that week following.

      At our hospital they have a bell attached to the wall, she gets to ring it. She wants to ring it twice, once for herself and once for her uncle Mark who didn’t get a chance to ring it.

  4. Ann Brown permalink
    May 1, 2011 9:00 pm

    OT is just around the corner!

    I agree — leave the blog going (is this a democratic vote, representative, or some sort of monarchy? Perhaps you are a benevolent despot? Does my vote really count?) OT land is something like the Emerald City, where things are MUCH MUCH better than the woods or the witch’s castle, but things still often don’t appear as they seem, and can be quite confusing and sometimes intimidating (have I mentioned I’m really sleep-deprived and not making sense?). I don’t think we’ve really woken up in the farmhouse in Kansas quite yet, or perhaps we have, but have a doozy of a concussion.

    I think there will be a moment for me when it becomes clear that I need to close out Elke’s CB page, but at 3 months OT, I can tell you I’m not there yet. Perhaps you’ll feel differently. That’s where the benevolent despotism comes in….

    I’m off to bed.

    And yes, it’s me, not you — I’m the one not making sense. Will get some sleep and try again.

    • Ann Brown permalink
      May 2, 2011 6:42 am

      Btw, have no idea about a title. I was never good at titles. You have a knack for them, I think (ie titles for your blog posts) — go for it!

    • May 2, 2011 12:55 pm

      You actually sound like me. The only time for internet is after everyone goes to bed, then I am so excited to read blogs and information and shopping I am woozily heading to bed at 3 AM..

      RE: blog, I am gonna update.. It seems I am aksing the wrong questions. I ask everyone about every decision, I am sort of annoying that way. Hubs has forbidden me to discuss hair with him at all.

  5. Quinn's mama permalink
    April 30, 2011 11:13 pm

    Naw leave this blog. That way in the furture when strange crap comes up we can still all find each other and seek ideas. As much as I want to belive that when we give the last dose of chemo this ride is over, for some reason I think we just hop onto a less scary ride. Plus, your blog is public it can help so many who will be diagnosed in the future. Just as I typed that I cringed… More kids diagnosed in the future. How do we prevent more kids from walking in the path of our children??? But, at least if they do the families can seek info on your blog. I am dead empty on creative names for the blog. Maybe after a few glasses of wine something might come to mind? When is Isa’s OT date? Soon right?????

    • May 1, 2011 1:22 am

      Soon Soon Soon, 9 days we go back and it could be that day but I am not sure. I will leave this blog, but don’t want to just start posting boring stuff so guess I will start a new one for that and keep this one for just cancer.

      Met a man today whose sister died from leukemia in 1967. I told him thank you. Without little girls like your sister, who were experimented with, we would NOT have Isa. He said that in his life, no one had ever put it that way, and that he would be telling his mother. In 1967 I am sure leukemia was a death sentence. And I agree can it really be over? NO! It will never be over and we will always be vigilant.

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