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Mid-month Counts

December 2, 2010

**woot** counts are good, but that means that Isa’s chemo gets upped to 100% dose.  Her ANC was 2050 which was good enough for the oncologists to try to reduce it with more 6 MP and more MTX.  The bump in the road is behind us and we’re back on track.

Now it is 5.5 MTX pills on Mondays, one 50mg 6-MP everyday and then of course our favorite  2 tabs of 2 mg Dexamethasone for five days after she gets the 1 mg of IV Vincristine during our clinic visits once a month.

Remember the Holy Trinity when discussing Fever and Neutropenia, NO fevers, NO culture growths, + an increase in ANC.  The only way that they will let you out of the hospital is to have all three.  Keep your own time of the first temp in the range.  Remember that it can be a fever still, just no above 38.5, (this is the policy in our hospital at least, so, anything below 38 counts as NO FEVER,) so that you can start pushing to get out as soon as possible.  Save time and money.

One bonus from all of this hospital admission and going off treatment is that Isa’s cough  has gone away. For some reason the staff took a nose swab from Isa and ran a pertussis test, as well as just a let’s see what grows. She had CMV and adenovirus.  My guess is that the the adenovirus was the culprit causing her frequent barking style cough. Particularly since the pertussis (whooping cough) test came back negative.

Today a little girl asked, “What’s in her belly? A ball or something?”  Stepping in quickly, I rubbed Isa’s little buddha belly and said, “the medication she takes makes her belly pooch out a little bit, and thank you for asking, it’s good to ask about things that is a great way to learn.”

Even though her hair has grown back, there are still some outward signs that others, especially five year olds, can pick up on.  I forget sometimes, considering how she looked before as compared to now.

 

I have no patience to wait for the photos to load. I will get to them if I ever get to a proper internet connection.

 

Thanks for reading.

dmm

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4 Comments leave one →
  1. Ana Rodriguez permalink
    December 10, 2010 1:48 pm

    How long did it take for her hair to grow back? I can’t wait for my Eva’s hair to grow at least chin length, I miss brushing it (though I know she doesn’t)!
    Ana

    • December 17, 2010 4:09 pm

      It has been a year, and she has the short pixie style cut, even though it hasn’t been cut. Will get her first haircut hopefully on Jan 14. her diagnoseversary!

  2. Maren's Grandma permalink
    December 3, 2010 12:16 am

    To Isa’s Mama,

    I am praying that God will protect you all and keep you safe and healthy throughout the Christmas season. May His angels surround your beautiful child and keep her infection free and strong! Thank you again for sharing your journey with us.

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