Yesterday was our monthly visit to the hospital. Getting up early and driving two hours leaves the girls cranky, not to mention the rest of us who are typically cranky.
We got there, signed in and then the girls started arguing over the computer game station that is in the waiting room.
We were sort of in and out, but not really. It just went sort of smoothly. Isa got accessed sans crying, and received her Vincristine.
They upped her dosage of 6-MP because her counts were too high for the past three months. Normally they won’t increase the dosage unless there is change greater than 10% in the BSA…. weight X height divided by 3600 then take the square root. BUT, Isa got her dosage increased because her counts went like this 2100 ANC to 3200 ANC and then this month 3600 ANC.
She tolerated the medicine well, but she did end up with diarrhea and a fever. I took note of the fever told her dad the temp and we decided to watch it. At 11:00 she felt cool to the touch. Always a game those damn fevers. Also a gentle reminder that this ain’t over until, well, never. As long as she is alive there will be something about cancer that will remain. Whether it is an unusual dislike of salt water (when her port is accessed she can taste or smell the saline) or something worse. Cancer is here with us for the long run. Maybe it’s time we made nicey nicey and became friends.
We’ll see how this week on Dex goes. Everyone loves a 4 year old on steroids!!! And how she tolerates her new dosages. She is a trooper, and so is her sister for putting up with all of this for over a year. Siblings need support too.
Thanks for reading