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Hair Makes Smiles

March 4, 2010

Every time I look at Isa’s little fuzzy head I smile.

The chemotherapy that she is taking does not affect her hair as strongly as some of the others. This means that her hair is starting to grow back. For the most part this makes me smile. We are getting closer to the end of this round of treatment. With everyone’s prayer energy coming to us, it will likely be the last treatments she will need. If it isn’t then she will lose this hair again.

When she first received her diagnosis I searched the internet for any and all information about what other families experienced. This ranks as the major reason I have so many links to other families on this blog. Every child is different. Duh, we all know this, but every leukemia or cancer child is different and maybe just maybe if a parent reads enough blogs that parent can find one child that is similar. That similarity could save time, money, worry, whatever.

The other thing I remember about reading those blogs is that after LTM or OT (long term maintenance or off treatment) starts, most parents quit blogging. After all what is there to say?

Her hair is growing. Her energy is up, and she can actually jump and get her little feet off the ground. The vincristine has affected her hand-writing again. During delayed intense and those periods where she doesn’t take VCR she gets much more stable, less shaky. I noticed that her eyes stay dilated longer than mine or her sisters. This may also be a side effect of the vincristine.

Her belly is still enlarged. Why?  No idea. Possible constipation even though she has regular BM?  Related to ven0-occlusive disease caused by the 6 TG and/or 6 MP? Growing?

Mostly, this is a strange little period. Some parents just keep watching and watching and then let their breath out only after years and years.

I am glad to have my daughter back, she is a stronger as in ‘I’ve been through a lot so I know I can handle anything’ kind of stronger.

Thanks for reading.

3 Comments leave one →
  1. March 5, 2010 12:20 am

    J’s hair is growing back too–I love that fuzzy head and kiss it often. J has spindly arms and legs and a large belly relative to her twin as well. I don’t know what it is about, either. The vinc makes J’s right hip hurt, and she won’t “lead” with it up the stairs.

    I wonder about the long term effects of all of this. Yeah, better than being gone, of course, and we’ll cope with whatever presents itself, but it sucks to have to think this way. I hate cancer.

    • March 10, 2010 4:12 pm

      That vincristine is a sneaky nasty drug. The docs talk about the Cytoxan which is also nasty, but the VCR affects Isa in such subtle ways. Right now she can’t write again. She was better but now even though she only has it once a month, she can’t write very well.

  2. ALT permalink
    March 4, 2010 11:13 pm

    Thanks for the update! She has her energy up just in time for nice weather!

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