Day 29 Busts
Today, Isa just had her blood checked, most of it looked good, but her ANC was only 665 which isn’t high enough to start the next segment. The next segment contains some hard core killers.. Like if these drugs were people… think solitary confinement or death row. So rather than take the risk at taking her too low, too fast, the protocol states to wait. The doctor decided to wait a week.
With her numbers as they were, a week will definitely help her reach the goal ANC, but then again, I’ve seen other kids whose ANC stayed low for several weeks. The blood has a mind of its own. This sounds scary, so i will let that image just sit with you.
We inch toward long-term maintenance. Most leukemia families talk about LTM as if it were the holy grail. I’m ready to be done with the hospital all together and LTM still has hospital visits and chemotherapy. At least done doing it alone, all the packing and organizing and getting up early is tough for me to do alone.