10 More Days
Lugging the pink backpack, full of things to do, to the car, after our almost 4 hours at the outpatient clinic, I felt surreal. This must be happening to someone else. Even after seven months of treatment, I can’t believe my daughter has leukemia. Also, I cannot believe that we have to do this Delayed Intensification again in 67 days.
Isa seemed to be feeling okay. Then the bottom dropped out of her counts. Her white blood cells do not exist, well, only .4 of them . Normal is 5.0. Her platelets plummeted to less than 4,000. Normal is 150k. After she was transfused with someone else’s platelets she only came up to 44k and then those were decimated by the drugs.
Ara-C kills. I can’t say only that one, maybe Cytoxan too. Those drugs are heavy duty. Hardcore Killers.
The transfusion she received on Friday helped her red blood cells for sure! Her hgb is 10.1 and RBC 3.22. Still low but good.
- Monday Transfusion 200 ml of A+ platelets, Transfusion of Packed Red Blood Cells >>>> sent to ER at 5:30. Couldn’t be admitted via clinic for some reason.
- Tuesday Nothing exciting here!
- Wednesday discharged at 5:00 after NO culture growth, NO fever and an increased ANC 180.
- Thursday Back to clinic for Vincristine, PEG, and transfusion 200 ml platelets. Went home. Fever spiked. ER. Admitted. ANC 40.
- Friday Transfusion of O+ RBC ANC 0.
- Saturday Transfusion of 200 ml platelets. ANC 192.
- Sunday Pretty quiet day at home.
This brings us back today. The discharge docs wanted us to have Isa’s blood checked today. We discovered that her ANC 24 is down, unless they had the wrong information at discharge. BUT her RBC and Hgb are okay. We are dealing with platelets and WBC.
She was pretreated today before transfused with 100ml of platelets, with Benadryl and Tylenol. Yet, as I type, I checked her and she feels warm. I will take her temperature shortly. This fever thing has been a roller coaster. And no one can explain why it is happening. Just, oh, No infection, off you go. The western medical community is in the business of PRACTICING medicine. The closest explanation is that the neutropenia can cause a fever, the low WBC count.
Ending the week with FIVE transfusions. That is more than she has had total up till now.