Hot Damn! (And I do not mean the sweet cinnamon drink.) When they call it Delayed Intense they mean they delay the intensity.
My little baby was burning up today >>>>>>>>>>> ER TRIP >>>>>>>>>>> Hospital Admission.
I believe that Papa and I have been taking this cancer thing pretty well. Learning and growing with each new thing and maybe having a few technical difficulties, but today we were
Since Monday, Isa was in the hospital receiving fluids, antibiotics, and around the clock monitoring. We were released yesterday at 5:00. Today, she received Vincristine, Platelets, and PEG at the outpatient clinic.
She came home and went straight to sleep. No biggie.
She woke up screaming that she couldn’t walk. No biggie. She had TWO shots of PEG, one in each leg. She says this everytime. I went to her, talked softly, and kissed her head.
OUCH… I burned my lips she was so hot.
After a couple of restless nights at the Hospital, Papa had taken the opportunity to nap, but something in the way I called his name and started shouting numbers to him.
“38.8, .9. 39… Money… 39… .point 1, point 2” with my voice shaking and squeaky.
He booked it to where we sat on the couch.
“CALL THEM, You gotta call them” he said,
taking the digital thermometer and the baby, while I ran around, not able to find my head. Instead of being pecked by chickens, I became one, with my head chopped off. I got the number, called, they told us to come immediately to the ER. Then more running around like a half-dead fowl. We gave her 5 ml of benadryl because we thought she was having a reaction to the PEG which could include anaphylactic shock.
Money started cussing, (not something we normally do, mind you) because he decided the thermometer was broken. It was reading so high and when he tried it on himself it started blinking 8’s and then went off. He tried again and it was just plain wrong.
BUT…we had NOTHING ELSE to check her with!!!!
Thus I begin the big freak-out! She feels hot, the docs told us to come in to the ER, and now we have NO thermometer. I called the nurse again, told her that I totally over-reacted because the stupid, cheap, digital I got at a certain big-box store was worth the money I spent on it and that we’d be going to CVS to get another, and I’d call her back.
As I threw the bags in the car, the hospital fun bag—always ready to go, a bag of random food (chips and cereal, what was I thinking?) and a bag with sweats and t-shirt for Papa, he carried the lethargic Isa out to her carseat. Meanwhile Gg is packing for Isa, getting the hospital blankets and a tiny white bunny rabbit. (Thanks 2K8) She was on the ball and a big help.
Luckily, our town is as tiny as Lazytown, we reached the drugstore in record time, which is saying a lot where we live, where driving fast is a sport! I rushed in, purchased a ducky new thermometer, then rushed out to check Isa again. EGADS, 39.0 OMG…. I CALL THE PHONE NURSE AGAIN with the new temp that is still ridiculously high, 102.2. Miraculously she answered the phone EVERYTIME. This never happens. At least this small grace was on our side today! I tell her we’ll be there ASAP.
Supposedly she called the ER, but when we got there, NO ONE seemed to know we were coming. In some ways it is so STUPID to take a child with almost no immunity to the ER. Papa said he saw a big green germ in the hallway smoking a cigar! (It’s okay, I didn’t laugh either.) Even though Isa was still acting lethargic and needy her fever was now 38.8. It dropped .2 in the 10 minutes it took us to get to the hospital.
Isa screamed like a banshee. She hates having anyone touch her, during port accession. BUT, we have to keep her from touching the clean area so we hold her. It was nerve-wracking, we ended up holding her down. Then after accessing, getting the monitors hooked up and 6 ml of Tylenol, her fever dropped. Way down. Down to below normal. 36. 5! (97.7) I coulda given her some Tylenol at home!!!!
She ate, yes, cereal and chips and watched movies. Why is she back in the hospital? Is this some sort of evil ploy to get us to actually show her a movie made by that children’s entertainment mega-corporation that we are currently boycotting? Why didn’t the nurses/doctors/nurse practitioners tell us that because she had a reaction to the platelets on MONDAY, that we should pre-treat her. This was only the THIRD time she’d had platelets and the 5th time for any blood products. We keep any superfluous medications out of her. If the docs say that it isn’t necessary then we opt for less drugs. BUT…
This day was just plain STUPID.
That word aptly describes how I felt all day. The ER nurse said, “oh, you didn’t pre-treat her with Benadryl and Tylenol?” Huh? the pre-treat combines those two drugs? Huh? How I did not know what drugs they give is a mystery. If we’d given them to her, then she probably wouldn’t have had any fevers. Ridiculous!!!
And now our “week-end” is over as Papa heads back to work tomorrow with Isa in the hospital again.
What you can learn from this…….
- keep more than one thermometer
- pre-treat before blood transfusions
- keep your bags packed, it cut down on our transit time.
- don’t let germs smoke cigars.