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Day 41, DI, Hospital Stay

August 11, 2009

Wow, what a long day.

I am very tired, so will give you the short version, which for me is like other people’s long version.

Hospital stays are about sitting around, watching movies, playing games, and such, but doing it all in a tiny space. This is the very first time we’ve had a private room so it kinda feels like a vacation. A very strange vacation but still, we have enough chairs for the entire family.

Isa’s counts Dropped. Believe it or not her ANC is now 40, it went down. The exact opposite direction it needs to go to get out.

To get out she needs.

  1. No fever.
  2. ANC trending upwards. ( A trend is more than one.)
  3. Nothing growing in her cultures.

So far so good, we got two out of the three.  So, just waiting for her to grow some cells.

Isa’s secondary problem is her lungs. She has had a cough for about 10 days. A loose rattley cough, a cough that no parent with a regular kid ( a non leukemia one) would even notice. But because she has no immunity, it could be a problem. She may get another x-ray, but the fellow doctor thought she sounded good.

Okay, Isa is fine. Just has to prove to the doctors via external signs that she is ready to go. None of the docs would say when. So we are there until the THREE things above are happening. It could be a while with the Ara-c, Cytoxan and 6TG that she has been taking. These drugs kill everything. That is their job.

I am way too tired to be writing this. I may have to revise it. So if it doesn’t make sense let me know.

Thanks for the Holy Trinity coment btw, it works perfectly.

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4 Comments leave one →
  1. Deadra AKA Demie permalink
    August 12, 2009 9:20 pm

    I see on your tweets that you’re home – yay yay yay! Hang in there, dolly – but what choice do you have, huh?? Love ya…

    • August 12, 2009 9:37 pm

      Do you think that our generation says “hang in there” more than others because of that kitty cat poster from the 80’s . Youknow theone,hanging from the tree.

  2. August 12, 2009 2:16 pm

    I don’t like hospitals and I noticed when I was struggling with breast cancer that when I at home I healed better than I did in the hospital. I think they should put these in every hospital: http://www.chilitechnology.com/ (they are a mattress pad that cools the bed). They’d be great for dealing with heat from chemo and fevers. My best hopes go out to Isa.

    • cheflucien permalink
      August 12, 2009 3:08 pm

      Isa likes the hospital a bit because she can watch A LOT of tv.

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