Day 1, Delayed Intensification
Check out Long Days to see what our typical day at the hospital looks like.
Today I didn’t stay for the Lumbar Puncture I took the other two children to McDonald’s. The busiest restaurant in the hospital is Mickey D’s which makes me laugh. Hospital, eating and McDonalds in the same sentence, and we’re not talking about coronary arteries.
We picked up some more Newberry Medal books off the Half-Price book cart, only they were FREE!
We popped into the Cardio Testing area around 8 am. But of course the chick who should have been working there had called in sick. So we waited for a replacement to come so we could get service.
Isa had to have an echocardiogram because the Doxo messes with her heart. Or COULD mess with her heart I should say. Her heart is GREAT! It will stay that way.
Before she got her chemo, she got an anti-emetic (Zofran) to prevent her from vomiting. So far so good. I still rode beside her on the way home, just to make sure.
BTW thanks to a NY Cancer mom for the idea of using gladware for vomit disposal. Wish I’d had it a couple of weeks ago when my son decided to hurl. No he isn’t receiving chemo. Just the victim of a curvy road in the back of a hot suburban.
Isa SAT QUIETLY during her EKG and her port accessing. Who knew ballet shoes and stickers could change a child. It is so amazing. Both girls can earn stickers which will earn them a pair of leather ballet shoes. The amount of stickers needed has yet to be determined.
Papa decided to wear a clean, white shirt today. And he even ironed it. Something about the clinic that triggers our coffee addiction. All went well until his shirt realized that he hadn’t put the coffee lid on properly.
One kid sitting in a chair with wheels, spinning.
One kid tapping at a DS, wildly.
One Kid hunkered on a table with a tube sticking out of her chest.
One half-naked man.
One woman washing a shirt in the sink. And no one saw it but me.
All looked good in Isa’s manual exam. It is the same exam every time we go. The VCR was the same amount as two weeks ago. The Doxo was the new PINK medicine. Hell, anything pink can’t be all bad, can it? Her counts will start to drop soon.
They could go as low as, uh, ZERO. In case you can’t read between the lines.
Please see what another cancer man had to say about this subject. We want NO visitors. We want to keep any and all people away from her. And if you do happen to see us NO KISSING. I am talking about her life people.
For some reason she got a lot loopier today from the Versed® and morphine. I didn’t notice. But Papa did. While we discussed the new schedule for Delayed Intensification with the NP, she screamed at us. “I CAN’T SEE.” Isa sits on the bed eating and watches television. If we stand just so, well, she can’t see.
We got out of there around 2:00 or so. So, six hours. And some days we don’t leave until 4 or 5:00.
Tuesday, we will all trudge back there for her PEG-asparaginase shots. My guess is that she will only have two. BUT, if she gains enough weight, it could be three. Because she is taking Decadron again, the steroid, she will gain some weight. These go into the front part of her thighs. It looks like they hurt.
Each day will have a new post. Ideally they will be quick to keep you up-to-date. I am making a post commitment.
Get used to seeing me. DI lasts 56 days. Or longer.