Two Days in a Row
Yesterday we went to outpatient center for Isa’s chemo. She had great counts, so they upped the dose of Methotrexate. She has tolerated it well so far, plus they give her IV Zofran to keep from having nausea. Luckily so Far so Good.
I was off buying hot toxic beverages [coffee] while she had her port accessed, but Papa said she did well, very little screaming. So she earned a trip to pizza restaurant. It was supposed to be a trip to the dancewear store, but between the four of us there might have only been enough patience to make it to the door. So I will have to find her some special stuff there on my own. Wait, I am a mom, is there any time I ever get alone?
Today we went back to the outpatient center for a shot of Peg-Asparaginase. She has to have it about 24 hours after vincristine. The manufacturers suggest this, because it supposedly increases the toxicity. We had to get her to pee in a hat, plastic of course, not knitted or woven, so the nurses could check her glucose levels. This shot is actually two shots simultaneously in both upper thighs. We applied the numbing cream which I assume takes the sting out. Isa didn’t like this so much. After it was over she crawled into the corner muttering “stupid doctors” under her breath. I suggested to her that it was likely that they were not stupid, but that feeling like they were seemed appropriate. I also told her that if we believed that these treatments were bogus, we wouldn’t do them. Too many kids survive using these protocols for us to think differently. Even though I can understand how someone might grab their kid and run away from being forced to do these treatments.