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Augmented Interim Maintenance

May 19, 2009

Today was our second chemotherapy in this treatment cycle.

It was my first going alone. Both girls and I with the backpack. OUch that thing is heavy, sometimes it is a real lifesaver, filled with things to do. Remember Tatum’s Bags of Fun. (BTW I found a new foundation called Chemo Ducks. Check it out on the Foundations page. We waited amidst the Amish as they sat there patiently, all eight of them. After being called back we sat in the room for just a short time ( long enough to start a movie, but not long enough to be finished with previews) when the nurse came in to access Isa’s port. Isa cleaned her skin and was behaving very nicely for just a bit, then she sank away from the needle and I had to hold her.

She does this every time her port is accessed. In the beginning she did not complain. Until that one time we had to take it out at home when Papa started to do it, then passed it to me. BEFORE we learned how to do with the safety, no problem easy peasey way of doing it. I am still irritated by this. They asked if we needed to know how to do it, but of course the home health nurse had told us. BUT she didn’t tell us that we had an option to use the safety version.  So since then port accession problems.

After she was accessed and sitting there with Woody and Buzz Lightyear, I realized… Ooops. We left the magic cream off. Neither I nor the nurse noticed that she had no numbing cream on her port. NO wonder she fussed this time.  It actually hurt. Oddly she didn’t scream any more than usual. Hmm… 

I did not see the MRD report with my own eyes, but the nurse practitioner said that it was less than .1%  which means, Isa is in Remission, and she is at an appropriate level, not too high like she was at the end of Induction. Her blood counts were high enough that I am half-way planning a trip to the Children’s Museum.

5 Comments leave one →
  1. natascha tomlinson permalink
    May 21, 2009 7:47 am

    2 great news – remission and clean ducts. Doing the happy dance for you!!!!!

  2. Tricia Kaiser permalink
    May 20, 2009 1:25 pm


    Please contact me ASAP! I have a company that our company works with ours that is going to clean your ducts for FREE!! I told him you have a fund going and he said, he won’t accept any payment and for you all to put that money towards something else. It is part of his company’s philosophy do good deeds at least once a month.


    • May 20, 2009 9:51 pm

      ***WOOT** Thanks Tricia. You really make things happen. I’ll be in touch!! Thank you so much. Now we can start working on the Hepa Filtration. We got Ozone, too.

  3. Deadra AKA Demie permalink
    May 20, 2009 8:22 am

    Ooooooooohhhhhhhhh yay yay yay I love me some good news in the morning!

  4. Auntie permalink
    May 20, 2009 7:16 am

    REMISSION !!!!!!!!!!!!!!!!!!!!!!!! Thank you dear Jesus.

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