Soleil Moon Frye
I like the exposure, but yet feel too exposed. I like that other people could be gaining some benefit from what I am writing. Maybe a parent could see what we are going through and find some solace. It seems that our family likes the photos, but they are just tiny slices out of our days.
Isa is still throwing tantrums regularly. I get irritated by the sound which then irritates me about the chemo, and that irriates me about leukemia. Sort of like If You Give a Pig a Pancake.
I have been thinking about staying at the house with Isa, who screams whenever anyone leaves without her. As her numbers drop we need to consider staying home more frequently. Currently she will go to the grocery with us. This week we visited family which could also be a risk as her numbers drop.
Tonight we met a neighbor who donates platelets regularly. If you want to do something to help a cancer child (or grown-up) in your community consider donating platelets. But be forewarned, if you do it once they will call you again because the blood banks run out of platelets all the time.
Thanks again to Soleil for being kind enough to reply. You can follow us both on twitter. http://twitter.com/moonfrye and of course