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Interim Maintenance

May 8, 2009
En route to Strawberry shortcake

En route to Strawberry shortcake

For several days,we’ve experienced a reprieve from some of the ravages of cancer. Isa started eating again, she was moving more easily, her pupils were back to normal, her hands were more stable and actually seemed to enjoy her life. That changed on Thursday when we started the chemo again. Check out the Schedule-Interim tab above for the approximate dates. 

The goal here is to keep the therapies going and the leukemia at bay, but to give the body a chance to recover slightly. When this period is over we will go into a second induction of sorts. It appears like a combination of Induction and Consolidation that we have already experienced. 

When we were changed from the Standard-Average level to the Standard-High protocol Isa’s minimal residual disease (MRD)was .24%. Amazingly, we needed her percentage of leukemia cells to be lower by just .15%. Using the modern technology the lab can find more cells and the doctors can adjust the protocol as needed. Today we wait for the results from her most recent bone marrow biopsy. The MRD needs to be below .1% yet according to the doctor today, Isa’s protocol will remain the same if it isn’t. A relapse would occur with an MRD of 5% or more. 

 

Making cards for Mother's Day

Making cards for Mother's Day

As a family we spend a lot of time together reading, drawing, eating, amazingly we laugh, and of course we eat. In fact yesterday when we found out that Isa’s absolute neutrophil count ANC was 2600 Papa decided to make the strawberry shortcake that the girls wanted. Isa says that her favorite thing to do is eat. We saw a little bit of that on Wednesday. 

 

Kids with cancer are still kids!

Kids with cancer are still kids!

We are managing to get by. We spend most of our time at home or going to the hospital. We make a few trips out and about, like today we got the turtle sandbox. Thanks Grandma M. We’ve discussed the possibility of naming her Tuttle Tuttle Turtle.

But one of us parents has to be home at all times. So far this has worked out time-wise but financially this is starting to be a problem, so we are looking for new and wonderful ways to raise funds. Some people are working on ideas and we will be glad to see those ideas come together.

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4 Comments leave one →
  1. Ann permalink
    May 11, 2009 8:53 am

    Beautiful.

  2. DAWN CROXTON ONGKIKO permalink
    May 9, 2009 3:24 pm

    one word: reprieve, sweet reprieve!

  3. DAWN CROXTON ONGKIKO permalink
    May 9, 2009 3:23 pm

    indeed, awesome photos!!! I’ve been out of the loop for a week or so. I appreciate getting to see these beautiful gals of yours! I’m thinking of you and wishing you A MOST WONDERFUL MOTHER’S DAY!

  4. Mom permalink
    May 9, 2009 9:17 am

    What awesome photos! Love those kids!

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