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Hair Today, Gone Tomorrow *update*

May 5, 2009

First few moments after shaving. Isa thanks Papa for the haircut

First few moments after shaving. Isa thanks Papa for the haircut

Sorry to use such a cliche, but I just couldn’t help it.

This weekend found Isa losing more and more hair. In fact, she put in a barrette at one point, and like all good little girls instead of opening it she just yanked it out. Along with a lot of her hair. Then sister declared, “pull out more” and she grabbed it and yanked. Needless to say, I screamed, NO……. you can pretend that the dots represent the long drawn out mournful sound of a mother who isn’t quite ready to give up her daughter’s hair.

Well, at least I wasn’t ready until today. We have been planning on snipping it off when it became “time” to do so. Well, it was time. She had hair all over her pillow for days. She has been eating and stray hairs will fall into her food. Or as a mama I am grabbing the ones that just sort of dangle there. You know, like sticking out a little bit. She promptly swats my hand or moves her head.

So, Papa shaved her head today.

It was a good thing, but it meant coming to terms with the fact that she was losing it. She has cancer. I love her so much and it is so hard to watch these treatments affect her body. Hair loss, weight loss, trouble walking, hands shaking, dilated eyes, loss of appetite, changes in mood.

We start treatments again on Thursday, with a bang. Or is it a tap,  considering we will have a bone marrow biopsy, and a spinal tap and two kinds of IV chemo.  I am ready for all of this to go.

Isa and Papa doing monster Faces.

Isa and Papa--Sporting our new hair cuts.

*Update*
Isa looks gorgeous without her hair. Unbelievably I see her as more beautiful now without it. And somehow it seems like we have reached a milestone. Like having it hang over our heads was just bugging. Once it starts to grow back in, then we will know she is getting stronger and recovering.

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8 Comments leave one →
  1. May 11, 2009 10:00 pm

    Hi there. I responded to your question about meds on Serenity’s blog but wanted to stop by Isa’s blog as well & thank you. We give Serenity her 6mp in the middle of the night, between 11 and 12 usually. She nurses around 9 or 10 & we learned from the ALL-kids list that there is a statistically significant lower risk of relapse when it is given at night. I honestly cannot remember whether our doctor told us to take it on an empty stomach, but that’s what we do.

  2. May 7, 2009 11:44 am

    I just found your blog from Twitter. My daughter just finished her treatment for Leukemia, I so remember being where you guys are at. Just know there is a light at the end of the tunnel. Chloe lost her hair twice, once around Interim Maintenance, and then completely cue-ball bald in Delayed Intensification. It was heartbreaking for a bit, but just knowing that its all part of making her better, we overcame it!
    There is an awesome support group called ALL-KIDS on Acor.org
    I got so much incredible information from them during treatment, its just a bunch of parents with kids who have or had ALL. Its nice to know you have somewhere to go where people really do understand what you are going through. Check it out if you get a chance.

  3. Ann permalink
    May 7, 2009 8:25 am

    Beautiful, hair or not. Great to see her laughing and kissing and loving.

  4. Casey permalink
    May 7, 2009 7:08 am

    I’ll be keeping Isa in my prayers. My husband and I joined the National Marrow Donor Registry going on 4 years ago. Last spring we found that he was a match for someone and in July of last year we went to NC and he donated bone marrow. He’s said he’d do it again in a heartbeat if asked. We registered on a whim to be honest but now that our lives have been touched by how great a gift donating can be we tell everyone to sign up. We’d want someone to donate to us or our children should they be a match and we needed it. Good luck, lukemia sucks. We’ll be praying.

    • May 7, 2009 8:47 pm

      Wow, what an intense thing to do! And wonderful. Another great idea is to donate Platelets. I have yet to do it, but hear that they are always running out.

  5. Uncle Jeff permalink
    May 6, 2009 11:59 am

    Great pictures Greg. She’s a beautiful girl.

  6. May 6, 2009 9:10 am

    It is sad to see your little one lose their hair, I would imagine even more so having a little girl going through it. Daniel’s is very thin, especially on the crown of his head but we haven’t gotten to the need-to-shave-it-point yet. Isa, you are beautiful! My six year old Caroline said, “She is so cute.” Isa, we LOVE the picture of you laughing with your Papa. How precious! Hang in there Mama. Praying for Isa and ALL of you!

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