My friend just asked me how I was doing, and it is such a hard question to answer. We have a long, long road until we get to the end of treatment. Then after the chemotherapy stops we have monthly check ups for the first year afterward. And every year after that, more and more check-ups. I like to believe that she will survive, but still, within five years my daughter could be dead. It is a fact. With her Standard-High risk, I wonder if she has a higher chance of relapse.
How do I balance treating her like she is going to live, like, making sure that she keeps up with following the rules, treating me respectfully, learning her ABC’s etc.. with the fact that I just want to sit around and hold her, all day long. Not force her to take medicine. Not take her to get spinal taps and blood transfusions.
But, back in the present, leukemia has changed our lives in so many ways. Some of them subtle and some of them obvious.
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