Classification or Category unknown.
Status of life: Unknown.
I feel like I am stuck in a loop, of Maslow’s Hierarchy. It seems just as one thing becomes solid, the earth changes again. Like I just ride on some sort of teutonic plate throughout life. http://en.wikipedia.org/wiki/Maslow’s_hierarchy_of_needs.
I wish I could explain it better, but no one can understand what is happening with us. Maybe other cancer parents, but each situation is different. For some reason, Papa & I seem to be able to find the HARDEST path, and take that one. Makes for some interesting dinner conversations. It leads our immediate families to shake their heads frequently. No one can understand why we do the things we do. I’m not sure why we do the things we do. Misguided good intentions?
Papa just had tea with the girls. We aren’t focused, we are scattered and maybe scared, but not so much. More like annoyed. Today is a feeling day. My stomach hurts. I have no idea if it is nerves, something I ate or didn’t eat. My thoughts are scattered. How this is different from my usual self, well, I don’t know. Not much different actually.
The goal is to keep Isa healthy. Dr. Fallon said that any type of mold spores can be bad for her. Anyone who has spent time in Madison will note that mold is rampant. It is an old damp town full of musty, dusty and moldy things. Obviously, she can’t be out and about in crowds, or anywhere there could be a threat to her.
If she gets an infection, she WILL BE READMITTED to the hospital on IV antibiotics. If she gets a fever we call the pediatric oncologist on call, who will then direct us to the emergency room or to take tylenol then go to the emergency room. If we go to the emergency room we will be admitted. Riley has satellite clinics in Fort Wayne & South Bend, but nothing in Southern Indiana. According to her last labs, her platlets look good. Dr. Vyck seemed to think that her bloodwork looked good. Ideally, she won’t need anymore blood transfusions.
Right now, I feel more comfortable being a hop-skip-jump away from the hospital, but this could change as I adapt more to being a cancer mom.
Thanks again to all who have helped.
Thanks to the visitors: Auntie, Paula, Archbishop Daniel, Uncle Jeff, Grandpa E, Ms. Amy, Rachel, D & D, Sister Louise
It was certainly enough to feel loved and not enough to feel overwhelmed. The tea set was a HIT. The painting markers were fun today.
Thanks to all the blog visitors.